So for the longest time, I have had full body symptoms. It has seemed every system in my body was messed up and the doctors have been at a loss because nothing helps and the symptoms are so spread. It has become debilitating. I ran into a disease called Dysautonomia. I think this may be it, I sent a message to the Mayo Clinic in Minnesota and and Autonomic Neuorologist in Toledo Ohio, as there are no specialist around here. I will let you know what I hear. I feel relieved, I may not be crazy!It sounds exactly freaking like me, check this out:
http://www.thyroidboards.com/showthread.php?t=6114&page=6
Wednesday, August 22, 2012
Monday, August 20, 2012
It's been awhile
Oh my goodness, boy has it been awhile since I posted. I didn't realize it had been this long! I am so sorry about that. I have had so much going on. There is always something going on with my health:/ Still very happy I had the Colectomy. I am on Amitiza 24MCG twice a day, but not every day.At one point, I was up to 4-5 per day which is downright terrible.
The only downfall has my Gastroparesis has gotten pretty debilitating, which I have heard is common to get worse for some reason. I had an Endoscopy a few months back, after 18 hours, I still had tons of food left in my stomach.I am nauseous, have vomiting, diarrhea, HORRIBLE stomach pain(worst pain in my life), so they just recently put me on Reglan but that isn't for long term use. Apparently, the food sits for so long in the stomach that it ferments and causes all of the issues. I am meeting the Gastroenterologist to follow up at the beginning of Septemeber, I hope I won't have to have the Gastric Pacemeake implanted.
Still have been struggling with my Thyroid. For once, I would love not be exhausted. I have had issues with syncope and tingling of extremeties I saw an Endocrinologist at the beginning of July, if you recall I was diagnosed with Hashimotos Thyroiditis. We tested my levels and my TSH, FT4 and FT3 were all low, if you know anything about those labs, those are strange results. He suspected Central Hypothyroidism. We did a Pituitary MRI and no Adenomas but a weird enhanced contrast area, we are still trying to figure that out:/ Had ACTH Stim Test done too, again results were confusing. He suspects Adrenal Insufficicency or Hypopituitarism. Depends on these last labs come back will depend on if I need more tests and if I have to start the Oral Hydrocortisone:( So yea, I am a mess basically.
Also, had a breast lump removed at the beginning of the year. For being 27, I am so screwed up and nothing makes sense or is straight forward. I have had doctors tell me I would make a fantastic case study. They get excited to see me.lol Seriously considering going to the Mayo Clinic. What if all of my issues have resulted from an underlying disease or illness? I have so many different typs of specialists, yet they aren't speaking with one another.
Anyways, I will try to post more often. Have a great day!
The only downfall has my Gastroparesis has gotten pretty debilitating, which I have heard is common to get worse for some reason. I had an Endoscopy a few months back, after 18 hours, I still had tons of food left in my stomach.I am nauseous, have vomiting, diarrhea, HORRIBLE stomach pain(worst pain in my life), so they just recently put me on Reglan but that isn't for long term use. Apparently, the food sits for so long in the stomach that it ferments and causes all of the issues. I am meeting the Gastroenterologist to follow up at the beginning of Septemeber, I hope I won't have to have the Gastric Pacemeake implanted.
Still have been struggling with my Thyroid. For once, I would love not be exhausted. I have had issues with syncope and tingling of extremeties I saw an Endocrinologist at the beginning of July, if you recall I was diagnosed with Hashimotos Thyroiditis. We tested my levels and my TSH, FT4 and FT3 were all low, if you know anything about those labs, those are strange results. He suspected Central Hypothyroidism. We did a Pituitary MRI and no Adenomas but a weird enhanced contrast area, we are still trying to figure that out:/ Had ACTH Stim Test done too, again results were confusing. He suspects Adrenal Insufficicency or Hypopituitarism. Depends on these last labs come back will depend on if I need more tests and if I have to start the Oral Hydrocortisone:( So yea, I am a mess basically.
Also, had a breast lump removed at the beginning of the year. For being 27, I am so screwed up and nothing makes sense or is straight forward. I have had doctors tell me I would make a fantastic case study. They get excited to see me.lol Seriously considering going to the Mayo Clinic. What if all of my issues have resulted from an underlying disease or illness? I have so many different typs of specialists, yet they aren't speaking with one another.
Anyways, I will try to post more often. Have a great day!
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