Ugh

I just feel the need to point this out because I keep hearing it "Constipation is not a disease it is a symptom", ok for most it is but not for everyone. I eat well as it is and exercise. Fiber doesn't do anything but give me gas. This is a functional problem. The nerves and my muscles in my Colon are DEAD. Nothing is going to help, I wish people would quit talking about that which they know nothing about!!

Surgery

Surgery is set for June 29th at 1P.M. I have to arrive at 11A.M. It will probably take between 3.5-4hours and typical hospital stay is around 4-5 days. He will be removing a small portion of Small Intestine and all of the Colon except the rectum and 1 inch of Sigmoid Colon. I am so excited and so ready to get this over with and continue living my life. Good thoughts please:)

Tomorrow

Well tomorrow is my doctors appointment. It was moved up to the morning so that is good but I am so nervous. I hope he offers surgery. I am tired of the pain, I want to feel somewhat normal again. This consume my whole life. I will update but I am so worried he will say no.

Impaction

OMG another impaction. I am so done, I want this thing out. If he doesn't offer surgery I don't know what I will do. This has been progressively getting worse and worse. I can't take the pain anymore:(

I don't get it, how can I have a slow Stomach and non-functioning Colon but a super Small Bowel? I have a list of questions to ask the doctor about surgery as well as the SBFT. I am trying not to worry. What else would they do for a fast Small Bowel? We know the Large Intestine won't get better so wouldn't be in my best interest just to get the surgery?
Something he said that was interesting and that 60% of patients consider the surgery a complete success while 20% still struggle with constipation and 20% have horrible diarrhea. He said he had one lady who has such bad diarrhea she has to have IV fluids once per week. This is where my concern from the SBFT comes from. He did mention though they he leaves a very small segment of Sigmoid Colon so maybe that would help. I don't know, I just want this diseased Colon out of me. I just didn't expect these results. We spoke about what would happen if I had a slow Small Bowel but we sure didn't talk about this:(

Camilla and Alivia-These are my two beauties. Camilla is the blondie with blue eyes,she is my clone with hair almost to her butt. Alivia is follically challenged but what she lacks in hair she makes up for in sass. They are amazing little girls. So well mannered. They are my entire world.

Aren't they cute?!

Well I figured for anyone who may see this, it is nice to know what the person's story your reading looks like. Also, additional information. I am 26 years old. I have been married for almost 8 years. I have a BA in Clinical Rehabilitational Psychology. I have twin daughters born March 21, 2009. They are IVF babies! They are my entire world and so gorgeous! I love football (GO COLTS!), traveling, reading and most of all SLEEPING!

My hair color changes frequently;)

SBFT and UGI

Ok so today was my hopefully last two tests. I arrived at the hospital. They brought me back with the Flouroscopy room was. I stood in front of the x-ray and swallowed these crystals that tasted horrible. I then washed that down with THICK Barium. They leaned me back and had me to flips and move every which way. The UGI took 10 minutes and was perfectly normal.
After the UGI was the Small Bowel Follow Through. They had me drink another huge cup of thinner Barium. I was then going to be taken back every 15 minutes for an x-ray until it reached the Cecum. Well they were late, so my first x-ray was at 30 minutes. The tech came out and said that I was done:o I was in shock. Normal is between like 1-4 hours for this test. Mine was 30 minutes!!!! Every other part of me is slow but not my small intestines.
I started to freak out thinking that this will be bad for surgery. I called my surgeon and the nurse said he was out until Monday:/ So I decided to get the report from the Radiologist. It said that everything looked fine and then my transit time of 30 minutes was "within normal limits". So I suppose it is normal but I still worry that he will say this will be an issue for surgery. So I guess I have to wait and be patient.

Obsessed

This is just ridiculous. I worry myself sick,all I can think about is this test on Thursday. Ugh, I am so close but yet I feel so far away. I have been called a pessimist but in reality when pretty much everything else has been abnormal,how am I supposed to believe that this wont?! I don't want to do more tests, I am so frusturated!

A glimmer of hope

Today went better than I imagined. He said that I did have Gastroparesis which is great that it isn't too bad but it is enough to warrant a small bowel follow through. Gastroparesis can get worse after a Colectomy though. So I will have the SBFT on Thursday. Next, surgeons appointment is on the 26th,if the small bowel test comes back normal we will be scheduling the surgery.

Tomorrow is the surgeon's appointment. I am so nervous. I can't believe I was so close to surgery and then this happened. I feel so helpless. I know I am wallowing in my own pity but I am so frusturated.

Update

At 4 hours, I had 20% remained for the GET. So it is mild Gastroparesis, don't know where we will go from here. I know I will have to have my small bowel tested. I guess I will find out from the surgeon on the 16th.

Had my tests today. Nerve study and Anorectal Manometry was normal. The GET however was not. At 4hours, more than 10% remained and this is not good. I have a feeling that surgery will no longer be an option. I am devestated.

So Anxious

My three tests are on Wednesday. I am so anxious to get them done and over with. I imagine the surgeon won't tell me my results until my next appointment which is May 24th:/ I am trying to wrap my mind around the fact that I am supposed to relax while having something stuck up my butt. lol Of course, I am going to be tense!!!!! I am still so worried about the Manometry. I dread the fact that I may have to have a Botox injection and go through biofeedback. Even if I do have some Anismus, it doesn't matter if the stool NEVER REACHES THE RECTUM! I do imagine they will find some Pelvic Floor Dysfunction. I have tried to learn to relax but I am such a tense person. I also dread spending 4-8 hours at the hospital. What a lot of fun that will be. Good thing, my insurance should cover all this so I will not complain anymore.