Hmmmm

So for the longest time, I have had full body symptoms. It has seemed every system in my body was messed up and the doctors have been at a loss because nothing helps and the symptoms are so spread. It has become debilitating. I ran into a disease called Dysautonomia. I think this may be it, I sent a message to the Mayo Clinic in Minnesota and and Autonomic Neuorologist in Toledo Ohio, as there are no specialist around here. I will let you know what I hear. I feel relieved, I may not be crazy!It sounds exactly freaking like me, check this out:
http://www.thyroidboards.com/showthread.php?t=6114&page=6

It's been awhile

Oh my goodness, boy has it been awhile since I posted. I didn't realize it had been this long! I am so sorry about that. I have had so much going on. There is always something going on with my health:/ Still very happy I had the Colectomy. I am on Amitiza 24MCG twice a day, but not every day.At one point, I was up to 4-5 per day which is downright terrible.
The only downfall has my Gastroparesis has gotten pretty debilitating, which I have heard is common to get worse for some reason. I had an Endoscopy a few months back, after 18 hours, I still had tons of food left in my stomach.I am nauseous, have vomiting, diarrhea, HORRIBLE stomach pain(worst pain in my life), so they just recently put me on Reglan but that isn't for long term use. Apparently, the food sits for so long in the stomach that it ferments and causes all of the issues. I am meeting the Gastroenterologist to follow up at the beginning of Septemeber, I hope I won't have to have the Gastric Pacemeake implanted.
Still have been struggling with my Thyroid. For once, I would love not be exhausted. I have had issues with syncope and tingling of extremeties I saw an Endocrinologist at the beginning of July, if you recall I was diagnosed with Hashimotos Thyroiditis. We tested my levels and my TSH, FT4 and FT3 were all low, if you know anything about those labs, those are strange results. He suspected Central Hypothyroidism. We did a Pituitary MRI and no Adenomas but a weird enhanced contrast area, we are still trying to figure that out:/ Had ACTH Stim Test done too, again results were confusing. He suspects Adrenal Insufficicency or Hypopituitarism. Depends on these last labs come back will depend on if I need more tests and if I have to start the Oral Hydrocortisone:( So yea, I am a mess basically.
Also, had a breast lump removed at the beginning of the year. For being 27, I am so screwed up and nothing makes sense or is straight forward. I have had doctors tell me I would make a fantastic case study. They get excited to see me.lol Seriously considering going to the Mayo Clinic. What if all of my issues have resulted from an underlying disease or illness? I have so many different typs of specialists, yet they aren't speaking with one another.
Anyways, I will try to post more often. Have a great day!

Hi guys! Everything is pretty good. I have been taking the Amitiza 24mcg, once instead of twice per day. Some days I have to take two but boy the nausea that comes with this dose is not even funny:/ So I am also on Reglan for the horrible nausea. I am just happy that the meds are still working. In the meantime, I need to find out what my trigger for gas is. What type of diet can I try?!! Gluten free and lactose free really didn't do much. If I could figure out what causes the gas I would happily stop eating it!!
Great news I am at 130!!!! 129 was my pre-twin baby weight. That is a total of 22-23 pounds since my surgery. I look awesome and most of the time I feel awesome too!

All good

3 month post-op was today. I am doing fantastic. Other than the very painful trapped UPPER gas pains, all is well. He said for that he may send me back to the GI. It could be a Gluten intolerance or it could go back to the Gastroparesis. I will tell you it hurts and nothing helps because it is in the top part of my abdomen and not down low by my rectum. I have been on 8 MCG of Amitiza twice per day, this has helped with distention. He wrote a prescription for the 24 MCG 1 or 2 per day to see if it helps. I will keep you guys updated.

Truly Happy

CHECK OUT HOW SLIM MY FACE LOOKS NOW!

Almost 3 months out

It has been awhile,most things are going well. I go for my 3 month Post-op on Thursday. I have a bowel movement every day. Of course, I have been on the Amitiza quite awhile. This has reduced the bloating significantly. There are still times where I get HORRIBLE gas pains but here is the kicker,they are up by my stomach not by my rectum. It is impossible to get it out when it is that high up. Over Labor Day weekend I was in so much pain. I have no idea what it is from as it seems to come in phases.
Same thing goes with the type of BM. One week, I will have pure liquid (looks like urine) bowel movements 10 times a day ( No, I don't mind this, I acutally prefer it). It doesn't hurt like diarrhea,it makes you feel so cleaned out, I thorougly enjoy pooping!lol My favorite part of the day.
Oh but going back to what I was saying, one week liquid bowel movement. The next week soft but formed, then the next week mush and not formed and then one week I barely go any when I do go(during the painful gas times). I would imagine it would have to be hormones but it doesn't line up with my Menstrual Cycle the way you think it would. So I don't know. I am so happy that I had this surgery. I feel great! I look great! 16 total pounds lost! 7 pounds away from my prebaby weight! I will post how Thursday's appointment goes,hopefully he will have some insight on the cause or cure for the upper trapped gas.

Oh and since I mentioned the heart problems, I did have my appointment. She wants me to have a 30 Day Cardiac Event Monitor and Echocardiogram done. I have decided to wait until my next panel of blood tests(in 4 more weeks) to see if that makes a difference. I actually was HYPER last time and that can cause heart symptoms.

Just noticed it had been awhile. Nothing has really changed. The Amitiza is still working,for now at least. I am feeling awesome. Since they switched me from Levothyroxine to Synthroid, I have noticed a huge difference. I feel great. I wake up before my alarm clock goes off. I have energy. I look good and healthy. I have my last appointment with my surgeon at the end of September. I also have the Endo appointment but I don't think I am going to go. My new PCP is very knowledgeable and now I have the correct diagnosis (Hashimotos) we can focus better on what to do. I am still so upset they all of my other doctors didn't think to check for Antibodies,welp that is why you have to be proactive no matter what you are dealing with!

How old am I again?

My 6 weeks was up on Wednesday. Doing pretty good. The Amitiza seems to be working. I have a deathly fear that it will stop working and I will have the distention again:( All is pretty good on the GI side of things. I had my first new patient appointment with my new PCP. I really like him. He is a nice guy and very VERY knowledgable. We ran a full panel of Thyroid tests today. We haven't ran a good workup in years because of my crappy doctor. I should get the results back next week. We also did a CBC and a Comprehensive Metabolic Panel.
Now to the interesting part. I told him all of my symptoms:the tingling,lightheadedness...etc He decided to do an EKG while I was there. The results are.................................................... I have a freaking Arrythmia. You have got to be freaking kidding me! I am 26 years old. Is anything about my health ok? I swear I have seen almost every type of doctor there is:/ I guess it is good that we caught it. He said it could be totally fine but could be a symptom of a deeper problem. He scheduled me an appointment with a Cardiologist next Tuesday. When will this ever end?!

All is going well. Some days are better than others and I still have the nausea but I am ok with it. I am taking the Amitiza twice a day. The last few weeks have been amazing. I have done more in that small amount of time than I have in months! I got the rundown of my surgery....over $50k! Wow, that is just crazy to me. Definitely worth it though!